Fanconi Anemia Research Fund (FARF)
FARF is a national non-profit organization based in Eugene, Oregon. FARF was founded in 1989 by Dave and Lynn Frohnmayer, whose 3 daughters were diagnosed with Fanconi Anemia (FA). Unfortunately, all 3 daughters have now passed away due to FA or FA complications. Their mission is to fund clinical research to find effective treatments and a cure for Fanconi Anemia as well as provide education and support services to families worldwide.
Fanconi Anemia is an inherited disease that leads to bone marrow failure, leukemia, and other cancers. Though considered primarily a blood disease, FA may affect all systems of the body. It is a complex and chronic disorder that is psychologically demanding. FA is also a cancer-prone disease, affecting patients decades earlier than the general population. FA is typically diagnosed at a young age and the life expectancy of those diagnosed is rarely past young adulthood. The Fanconi Anemia Research Fund has raised more than $25 million for medical research and family support. More information can be found out: http://fanconi.org/
Nominated by: Jeanie White, Senior Project Accountant and Shawna Bredek, Director, Clinical Trials